The OHTN Cohort Study
The OHTN Cohort Study (OCS) is a community-governed, scientifically rigorous research initiative, designed to improve the health and well-being of people living with HIV in Ontario by promoting and supporting scientific, community-based and policy-relevant research. The OCS is a multi-site research study that collects clinical and sociobehavioural data on a cohort of participants living with HIV over time. The mission of the OCS is to develop, support and sustain a unique research database and cohort, governed by people living with HIV in Ontario and used in partnership by scientists, community-based researchers and other stakeholders.
Principal Scientific Aims of the OCS
The purpose of the OCS is to collect information on the clinical and health profiles of people living with HIV in care in Ontario to provide a robust information resource for clinical, socio-behavioural, population health, and health services research. Our aims are:
- To understand the pychosocial and health context of people living with HIV
- To understand patterns of health services use
- To understand issues related to mental health and addictions
- To examine HIV infection and its complications
- To examine HIV treatment and its complications, including adverse events and HIV drug resistance
- To examine co-morbid diseases and conditions among people living with HIV
- To examine social, psychological, and other factors related to behaviour that poses risk for secondary HIV transmission
OCS Core Commitments
- Community ownership and governance
- Informed and voluntary consent
- Privacy and confidentiality
- Greater Involvement of People living with or affected by HIV/AIDS
- Accountability
- Sustainability
OCS Goals
To maintain a rich and comprehensive dataset by:
- Ensuring participants reflect the Ontario HIV epidemic with oversampling of vulnerable populations where appropriate
- Supporting ongoing collection of appropriate and evolving health data (both questionnaire and medical information) to ensure capacity to examine new and emerging health issues
- Establishing and supporting linkages with other data sources including multi-cohort collaborations
To promote collaboration and synergy in developing research questions by:
- Ensuring rigorous and relevant scientific explorations that may lead to influencing new or changes in policy, care and treatment for people living with HIV especially populations most vulnerable
- Encouraging multi-disciplinary, multi-stakeholder and community collaborations
- Providing support for scientific and community partnerships in the development of OCS research
- Inviting external community (especially vulnerable communities), clinical researchers and students to participate in OCS research
To share knowledge gained through OCS research by:
- Promoting scientific publications to influence practice and policy
- Using OHTN knowledge and communication tools and networks to disseminate findings
- Ensuring that health research information is accessible and available to all stakeholders, including public and health policy makers, people living with HIV especially populations that are most vulnerable, and healthcare providers
News & Events
Abstacts at CAHR 2012
April 11, 2012
Find out who on the OCS will be heading to CAHR in Montreal and what abstracts will be presented...
Read More.
New Fact Sheet Release
April 5, 2012
Incidence of Toxic Epidermal Necrolysis and Stevens-Johnson Syndrome in an HIV Cohort...
Read the Fact Sheet.
Website Updates
April 5, 2012
We've updated the several areas of the website with the most up to date information. Take a look at our most recent publications, the many presentations from the OHTN Research Conference and important dates for this year.
Featured on PositiveLite.com
April 2, 2012
The OCS was featured by Bob Leahy of Positive Lite, the Canadian Online HIV Magazine...
Read the Article.
OCS Site Closure
December 19, 2011
The OCS Site at 410 Sherbourne closes on December 23, 2011...
Read More.
OCS Newsletter
December 03, 2011
Find our what's happening at the OCS in our Winter 2011 Newsletter...
Download the Newsletter.